Although the concept of living with and beyond cancer is evident in the sense of the disease and literature, encouraging patients to live with others and beyond cancer is difficult because of the inconsistencies. Living with and beyond cancer is commonly used about the process of resolving and overcoming challenges related to primary cancer treatment results (Foster et al., 2018). And from the other hand, cancer-affected people will lean to a wider interpretation, whereby life with and above cancer starts at detection. In this essay the Borton's Framework for reflection is used to narrate the experience of the patient suffering from the cancer and Le Boutillier et al’s (2019) Adversity, Restoration and Compatibility theory for greater understanding of the needs and experiences of those receiving or completing primary cancer treatment (Skinner et al., 2018). This expertise can be used in the creation of models for person-centred treatment and the enhancement of long-term quality of life for patients living with and beyond cancer.
After hearing a cancer diagnosis, the patient faces a multitude of problems. Concerning previously mentioned medical and logistical specifics, major concerns include fear of the future, deformities, discomfort, injury, depression, dependence, alienation, altered relationships, and financial hardship. The patient ended up with serious chest pain and back pain in the emergency department, and was diagnosed with leukaemia. The patient first went to an orthopaedic specialist for back pain, and the doctor confirmed patient problems with degenerative discs. But the patient did not get any relief after taking the drugs and the recommended treatment and the pain was getting worse. An X-ray showed there were stress fractures in the patient. Blood tests indicated the patient had anaemia, and the patient thought the haematologist would discuss iron supplements. When the doctor explained the diagnosis to the patient that it is cancer. The patient was shocked, and the patient's first question was: How long the patient will live. The patient also feels grateful to live with good hospitals and physicians in the metropolitan region, would have liked to have seen more support groups or networks especially for newer patients with specific cancers. The patient has also been connected to support groups for general cancer problems but would have preferred to speak about our experiences with other people in my age group. The only aspect patient considers a drawback is that the oncology clinics are busy, there is a lack of social workers, and doctors and nurses tend to concentrate on the most important patients.
Living with and beyond cancer is a term which is used in clinical practise and science worldwide. Notwithstanding this, there is no clarification as to what defines living with and beyond cancer from the patient viewpoint, and an accepted definition of the term is only just being developed. Three common concepts interlinked on how people make sense of their cancer experience by Le Boutillier theory : adversity (realising cancer), restoration (adjusting cancer life) and compatibility (reconciling cancer) (ARC), culminating in the overall structure for ARC (Le Boutillier et al., 2019). Adversity relates to the traumatic practice of relying on the life-changing effect of a detection, signs and eventual treatment of patients. At first it is very difficult for patients to cope with the outcome of the diagnosis. The fear of dying makes patients more nervous and thus the health problems deteriorate. This stage examines in particular how the journey to cancer detection has influenced the personal experience of growing up with cancer and life above it. Some patients mentioned difficulty with healthcare services well before detection while they had to continue in having their symptoms recognised by practitioners which slowed diagnoses. Restoration is the process of adjusting or maintaining one 's life to suit the present nature of recovery of cancer. The factors identified as part of the adjustment narrative include faith in health care, engagement in planning for treatment, and lifestyle changes. If the patient recognises the truth of the state of health and embraces the course of treatment it becomes simple for the health practitioners to create the patient's treatment plan (Holland et al., 2020). This stage of narrative review often involves improvements in lifestyle that the patient has made by engaging with the multidisciplinary team that manages the patient's health condition. This is the moment the patient gets optimistic and hopeful for the improved heat situation to get rid of the cancer-like deadly illness. The Compatibility refers to that part of the process of reconciling and rebalancing, developing new goals and perspectives. Cancer is just something else in existence for certain people, a discrete, straightforward medical occurrence with no complex repercussions. The patients get interested to learn the related encounters with the support groups. The services at this stage also includes rehab facilities and recreational activities for giving a boost to the patient life.
For nurses all of the above is being patient-centric and more. Being genuinely patient-centered requires knowing the patient experience through the diagnostic and care process. This is more relevant nowhere, than those in cancer care. When in a state of emotional distress, patients diagnosed with cancer often face complicated and life-change decisions. Nurses are considered the nucleus or foundation of the health care system (Sharma, 2019). In these new trends, the nursing has become even more complex and multifaceted, to respond to the rapid change and health care innovations. The very essence of nurses' work positions them in several hazardous workplace environments and situations which pose risks to their health and emotional state. The prejudice of cancer remains intact and debilitating despite the advances in research, technology, and medical therapies used to fight the disease (Dodge & Jarowenko, 2016). It means discomfort and extreme pain when people hear the word cancer, an illustration of an altered physical appearance due to surgical procedures, hair and loss of weight, other symptoms or untimely death. The person with cancer is affected by a wide range of crises such as panic, anxiety, ambiguity in the outcomes of the diagnosis and care as well as financial difficulties and losses (Curran et al., 2017). For nurses have become used to be care providers, they can inspire the person about such changes and keep him positive. The journey itself can be so rough, challenging and painful that, as a nurse and as a patient, the challenges of coping and adjusting to the symptoms of the disease often involve defences and coping mechanisms.
Living with and beyond cancer is widely used to refer to the process of resolving and overcoming difficulties related to primary cancer treatment results. After hearing a cancer diagnosis, the patient faces a multitude of problems. Despite this, there is little clarification on what defines living with and beyond cancer from a patient viewpoint and an understood definition of the term in the general context for ARC. The patient takes a long journey from accepting the disease to adjusting with the health conditions and then further working towards combating the same disease. In these modern times the nursing profession has become more complex and multidimensional to respond to the rapid changes and innovations in health care. For nurses who are used to being the providers of care, they should motivate and keep the person optimistic about such changes.
Curran, L., Sharpe, L., & Butow, P. (2017). Anxiety in the context of cancer: A systematic review and development of an integrated model. Clinical Psychology Review, 56, 40-54.
Dodge, D. G., & Jarowenko, A. M. (2016). Diagnosed with Breast Cancer: Stigmatized or Member of an Empowered Sisterhood?. In Stigma and Prejudice (pp. 145-166). Humana Press, Cham.
Foster, C., Calman, L., Richardson, A., Pimperton, H., & Nash, R. (2018). Improving the lives of people living with and beyond cancer: Generating the evidence needed to inform policy and practice. Journal of Cancer Policy, 15, 92-95.
Holland, L. R., Walker, R., Henney, R., Cashion, C. E., & Bradford, N. K. (2020). Adolescents and Young Adults with Cancer: Barriers in Access to Psychosocial Support. Journal of Adolescent and Young Adult Oncology.
Le Boutillier, C; Archer, S; Barry, C; King, A; Mansfield, L & Urch, C. (2019). Conceptual framework for living with a beyond cancer: A systematic review and narrative synthesis. Psycho-Oncology, 28, 948-959.
Sharma, S. K. (2019). Lippincott manual of nursing practice. Wolters kluwer india Pvt Ltd.
Skinner, M., & Mitchell, D. (2016). “What? So What? Now What?” Applying Borton and Rolfe’s Models of Reflexive Practice in Healthcare Contexts. Health and Social Care Chaplaincy, 4(1), 10-19.
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